Tuesday, April 30, 2013

April 27, 2013 marks 3 years with a good, stable heart!  We are so thankful!! Taylor is well and strong, learning and growing so much.  Here she is running through these, once long hospital halls, to her cardiology appointment.  So grateful!!

Taylor had her annual heart echo earlier in April.  She's doing well.  Her left, mitral valve is still showing moderate leakage.  He's not too concerned for today, as it seems to be managing well with medicine and her size.  He did raise concern again though for the abnormality of this valve.  Due to how damaged it already is, it cannot be repaired.  There is no need for immediate action but he does want to see her again in 6 months.  Eventually she will need this valve replaced with a mechanical one.  He hopes to put this off as long as possible, as it can bring it's own challenges.  Time and growth will tell.   We will continue to trust the Lord with our little star.  Love, Erin





Tuesday, August 21, 2012

Free E-Book - "Disability and the Sovereign Goodess of God"

Looks good.. Can't wait to be encouraged by it.  That verse out of John 9 brought us so much comfort and encouragement shortly after Tay was born.  God and His Word are proven faithful and true.  .. How I love our Lord

"One of the reasons I believe the Bible and love the Bible is because it deals with the hardest issues in life. It doesn’t sweep painful things under the rug — or complex things or confusing things or provoking things or shocking things or controversial things" (p. 7).

Does God have a good design in my disability?

To this hard question God is not silent. But if we're to hear his answer, we must submit our hearts to his word. Looking at what the Bible says is the aim of this collection of resources from pastor John Piper.

Look at all these amazing kiddos from our recent picnic!   We are so blessed to know these friends.



Friday, April 27, 2012

2 years with a good heart!   We are thankful to say Taylor's heart continues to remain stable and she is doing well.   She continues to be monitored every few months.   

We are grateful for those 2 month in the hospital with Taylor.   We only grew so much closer to God during that time.   We can "count it as joy"and "give thanks in the circumstance."   We know we will continue to learn this truth again as other types of trials come along.  The Lord is our sustainer.



"Consider what God has done:  Who can straighten what he has made crooked?  When times are good, be happy; but when times are bad, consider this: God has made the one as well as the other." (Ecclesiastes)

Heart Surgury Journal Posts   (Two Years Ago Today)

Friday, March 30, 2012

My dear friend, Carri Roman, captured these precious pics of Taylor and her sisters. I love them so much. If you are looking for an amazing photographer to capture you kiddos, check her out! The girls had a so much fun and Carri does an awesome job keeping it real. www.carriroman.com or Facebook





Wednesday, March 14, 2012

Look at her go!

She's doing great. Her heart continues to be stable and she couldn't be happier.

We are having so much fun helping her learn to walk. It's fun to see her excitement for her accomplishment. It's the best. This girl knows what a stinker she is as she snoops into everything. It's very cute (right now). Here's a few clips of her recent steps.

"I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well."

Saturday, November 5, 2011

I am grateful to know these ladies. We all have one thing in common...
















What a blessing it is to share and learn from each of them. I can't wait for the 2nd Tuesday of each month when we all have an opportunity to get together as families. (There are many other Mommies to be added here that are missing.)

Friday, October 14, 2011


It's Down Syndrome Awareness Month
I love all wonderful posts I've been reading.  Aaron and I feel so blessed and summarize our life with Taylor with one word.. JOY.  Regardless of any physical delays, mental delays, heart concerns, extra appointments, ect.. all doesn't compare to who she is and all she brings to life. How I wish everyone could know.

We've been so blessed to know many wonderful families and parents who have a child with ds.  They are all celebrating this month too. What a gift they have been to our family. Many of them will be at the San Diego Buddy Walk this weekend in yellow and blue to celebrate.

Tay's buddy, Elias, shows us how it's done.


So "cheers' to the "joy" in down syndrome and all the very special kiddos in our lives. We praise God for you and the blessings you are!

Wednesday, August 10, 2011

Thursday, July 21, 2011

She's so happy to be on the move! We know she's comin' when hearing the pitter patter of little hands along on the hard floor. It's so cute!

Monday, July 4, 2011

So thankful for freedom!

Wishin' my girls could have known my Grandad. Missin' him always..


Friday, June 10, 2011

At 20 months, Taylor has been busy learning and growing. She finally cut her first tooth and is now on her third! Whew. She loves signing all her knew signs for eat, nigh-night, more, bye-bye and signing time. Lately it's a lot of "eat, eat, eat." ;) With all her hard work, she's just about ready to get around on those knees. I was able to capture a little bit of her cuteness and added a few recent pics.

Thursday, April 28, 2011

This was a big hurdle. but she finally did it! She is finally able to get up into a sitting position on her own :).


Monday, April 18, 2011

Our little Sugar Buns is working so hard and so close to crawling. She's so proud of herself and really gets where she wants to go, rolling and scooting along. It's only a matter of time before she has us on our toes ;).