Wednesday, May 19, 2010

Each day has brought something new. My heart is heavy. In the last 24 hours Tay's lung looks wet again and they have put her back on oxygen. Her nose and eyelids are looking pink and her cry is muffled. They are not sure if she might be fighting another virus. There is no sign of an infection

As far as her heart and valve go, Doc (surgeon) says, "I just don't know..." It still shows moderate regurgitation but he says any little set back right now will have an impact on her heart. He feels as of right now they need to just let her ride this out, get rid of the fluid again and see how she does.

Thank you for the encouragment. We are so blessed by it.

Love,

64 comments:

Kelly said...

Continued prayers for our sweet little princess! And lots of positive energy for mom and dad too!! Sorry to hear about the setback, but our community has tons of prayer warriors...and we are pretty hard to beat!! Keep fighting Taylor, we are right beside you:)

ch said...

Praying for Taylor's lungs as well...LC developed wet lungs following her AV canal correction and went home on oxygen for a month or so. Well worth it for the opportunity to LEAVE THAT HOSPITAL...
We'll pray those ornery lungs don't weaken her ability to fight off those bugs and that the oxygen will give her a boost in keeping her body strong enough to continue to fight her uphill healing battle.

Hugs...

Sweet Pea's Mommy said...

Blogland is a wonderful place and I'm glad that we've found you and you've found us! Taylor has lots of people praying for her and I know she is a fighter and will win this latest battle! Thank you for the update! I am sure that writing your blog isn't top on your list of things to do, but we all love the updates!

Hugs & Prayers!

Cathy said...

Lifting Taylor up in prayer!!! Praying God gives you His strength during this tough time.

Kristin said...

Oh no. Poor little thing. It's a good thing these kiddos are the fighters they are. I am always amazed at what they overcome. Praying her little heart and lungs heal soon.

Rochelle said...

Oh no! So sorry to hear about her lungs. Praying for that little sweet girl of yours!

Michelle O said...

Erin, so sorry to hear about the setback today :( I'm thinking of you all and cheering you on from afar. I'll stop and say a prayer for Tay right now.

To Love Endlessly said...

Our kids have a special fighting chromosome linked to their extra little chromosome, God is on her side. We're praying for you in NC. ((many hugs))

Aunt Lana said...

O wow, Erin! I can just feel your concern and "heaviness". This is a setback for sure, but sounds like it's not too unusual for this sort of thing, huh? Doesn't make you feel a whole lot better, though, when you thought just last week that you'd all be going home! God be with you all, I'll be praying that your Mommy heart will be lifted, that you and Aaron will feel all the love and conern of so many who care! Hey, has anyone told you TODAY, that Jesus loves you??? He does, and little Tay, too! Hang in there, Sweetie!

Martha said...

I have to just say Amen to Aunt Lana's comments!! Well said, and my feelings exactly. Our knees are getting a workout, but that's okay. We love you all and will continue to pray for all of you - Tay, you, and those wonderful doctors and folks who work in ICU.
May you feel God's strength and peace and His absolute love!!

Sandy B. said...

Lovin' and prayin' for sweet baby Tay Tay! Love you guys!!!

Emily said...

I pray that sweet Taylor has the strength to fight this. She is a true angel!

Anonymous said...

My baby had a complete AV Canal repair when he was just 9 weeks old, he too didn't follow the "typical" path, we spent nearly a month in hospital. Just keep doing what you need to do. If you can push for Mammas milk it is simply THE best thing for stomach bugs !
love and blessings
Carol

B said...

way down on the chain but no less on the prayer. I pray that God is glorified through this situation, through you and Aaron and Haden and Ava, along with the doctors and most of all Taylor. May He give you His peace that passes all your understanding.

Many are coming together to pray for Taylor and all of you. I imagine that God is smiling because of all the love that is being poured upon Taylor and the family.

All these people are an encouragement even to me and I am thankful for you all as well

nitie said...

Our prayers go all out for his speedy recovery and well being.

Take care.

Navya, Pallavi & Ashish

Kel said...

praying for Tay with every passing thought...luv you guys...

Kelly D said...

I don't know you or your family, but i am a friend of one of your friends, and I am praying for you and for your sweet little girl. she is so beautiful and precious..

Heather said...

Sending continued prayers of healing for your sweet little love,from California from Zoey a fellow member of the discerning zipper club!Taylor is in amazing company of a whole pack of mighty fighter as well as being held in HIS amazing,grace filled arms.

amy jupin said...

sending a little prayer your way today for sweet tay. i've been in your shoes before--not so fun. praying for God to heal her little body and bring you all comfort and strength.

Anonymous said...

Praying for sweet Taylor, her mommy, daddy and sisters. May our Lord hold you in his gentle hand.

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