So.....we are going to get "home" out of our minds for awhile. That's been the hardest struggle this week. That main question, "So when do you think she can go home?" They can't say right now. They are doing what they feel is necessary to help give Tay the best fighting chance. It hurts not be able to take her home... more to let go and give to God.
We are now being told Taylor will need to continue to receive the IV to support her heart for at least another 2 weeks. From there..not sure. Things are always changing. Time will tell. She has been doing so great otherwise. Our prayer is for when they start weening her off. I don't know how long she will be here then, under watch. The concern will be that valve and managing it. She's to little to have a replacement valve at this time.
On a side note, we are seeing ways to connect with others here. I met a mom yesterday who shared how she's been praying for a friends. They've had it rough this past year, staying here with their baby for most of his 9 months. They still don't have a lot of answers yet. Our older kids have been doing school together, so I finally introduced myself. It's been great to talk with her, here their story and just be an encouragement to each other. God is always working in the midst. We continue to grow as we yield to His way not ours.